Another 911 night.

The pain wasn’t bad at all after I got home from massage therapy. In fact, I was relatively pain-free and resting most comfortably. 

About 30 minutes after getting home, however, the pain started again. First in my neck, then it radiated up through my jaw only to end up, again, in my head. It never reached the new “10”, thankfully, but it was at a most uncomfortable and painful 9.97 on the 10 scale. 

I took my regular medication dosage at 4, just as it started. I also took a Xanax and a Fioricet. An hour later, as my son was awoken from his nap by my crying, he made me take another Vicodin, Zanaflex, Xanax, and a Fioricet. An hour later, as my screams only got worse and the pain was surely killing me, my son called BFF and she came over and made me take another Vicodin and Zanaflex.
Once BFF gets here, she’s in charge. She called 911 and assured me, as they assured her on the phone, that they would be able to take me to University Medical (the only place I have any kind of discount or medical coverage) only to find out from the paramedics that they could not. That pisses me off. 

By then it was almost 7pm. The pain and screaming had gone on for about 3 hours. My son and BFF made me take my bedtime meds, which consists of a vicodin, neurontin three zanaflex, a Xanax, two fioricets, and two Advil PMs. And a shot of whisky. And a pot pie so I don’t get sick from the meds. 

Within half an hour I was so stoned on my meds that I couldn’t keep my eyes open. The pain was FINALLY gone, too. BFF put me to bed, tucked me in the my beloved snuggie and huggy pillow, and I was out before I knew it. 

I slept for four hours until the pain woke me again. My son made me take two vicodin, a Xanax, three Fioricets, and I think two Zanaflex. And a shot of coconut rum and a cup of tea with some rum in it. 

I understand the danger of consuming alcohol with my meds, as well as the amount of meds I’ve taken. At this point, I don’t care. Anything to get rid of this horrifying and screaming pain. 

Now I’m zoning out again, so I might just get another few hours of sleep. But, of course, I had to document the happenings of this night so I can refer to it later. 

Before I go, though, the above picture is the early birthday present BFF gave to me tonight to try and cheer me up.  It’s so cute! It will rest on my pillow with me and devour the souls of anyone coming in to do me harm…or those who are of no help in this situation. I won’t point fingers at the paramedics. But just sayin’. 

So that was my night. Nothing got done, I feel like I’m going to die, and now I’m going to try the sleeping thing again. 

I hope your night was loads better. I wouldn’t wish this on anyone but my ex-husband. 

Love and hugs, and goodnight. And please forgive any typos. I’m typing this on my phone and am pretty much out of it at this point. :o

Another 911 night.

The pain wasn’t bad at all after I got home from massage therapy. In fact, I was relatively pain-free and resting most comfortably.

About 30 minutes after getting home, however, the pain started again. First in my neck, then it radiated up through my jaw only to end up, again, in my head. It never reached the new “10”, thankfully, but it was at a most uncomfortable and painful 9.97 on the 10 scale.

I took my regular medication dosage at 4, just as it started. I also took a Xanax and a Fioricet. An hour later, as my son was awoken from his nap by my crying, he made me take another Vicodin, Zanaflex, Xanax, and a Fioricet. An hour later, as my screams only got worse and the pain was surely killing me, my son called BFF and she came over and made me take another Vicodin and Zanaflex.

Once BFF gets here, she’s in charge. She called 911 and assured me, as they assured her on the phone, that they would be able to take me to University Medical (the only place I have any kind of discount or medical coverage) only to find out from the paramedics that they could not. That pisses me off.

By then it was almost 7pm. The pain and screaming had gone on for about 3 hours. My son and BFF made me take my bedtime meds, which consists of a vicodin, neurontin three zanaflex, a Xanax, two fioricets, and two Advil PMs. And a shot of whisky. And a pot pie so I don’t get sick from the meds.

Within half an hour I was so stoned on my meds that I couldn’t keep my eyes open. The pain was FINALLY gone, too. BFF put me to bed, tucked me in the my beloved snuggie and huggy pillow, and I was out before I knew it.

I slept for four hours until the pain woke me again. My son made me take two vicodin, a Xanax, three Fioricets, and I think two Zanaflex. And a shot of coconut rum and a cup of tea with some rum in it.

I understand the danger of consuming alcohol with my meds, as well as the amount of meds I’ve taken. At this point, I don’t care. Anything to get rid of this horrifying and screaming pain.

Now I’m zoning out again, so I might just get another few hours of sleep. But, of course, I had to document the happenings of this night so I can refer to it later.

Before I go, though, the above picture is the early birthday present BFF gave to me tonight to try and cheer me up. It’s so cute! It will rest on my pillow with me and devour the souls of anyone coming in to do me harm…or those who are of no help in this situation. I won’t point fingers at the paramedics. But just sayin’.

So that was my night. Nothing got done, I feel like I’m going to die, and now I’m going to try the sleeping thing again.

I hope your night was loads better. I wouldn’t wish this on anyone but my ex-husband.

Love and hugs, and goodnight. And please forgive any typos. I’m typing this on my phone and am pretty much out of it at this point. :o

Its hard, the hardest thing I ever had to learn is to slow down, and not do everything. I fight this to this day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wanted her to feel that frustration. I wanted her to understand, that everything everyone else does comes so easy, but for me it is one hundred little jobs in one. I need to think about the weather, my temperature that day, and the whole day’s plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It is in that lifestyle, the difference between being sick and healthy. It is the beautiful ability to not think and just do. I miss that freedom. I miss never having to count “spoons”. The Spoon Theory written by Christine Miserandino
It’s common for a doctor to ask where you hurt and how badly you hurt, but as you likely know if you have fibromyalgia or chronic fatigue syndrome, pain is a lot more complicated than that. We need to understand how we hurt, and since we’re not talking about injuries or physical degeneration, it helps to know why we hurt as well. 15 Pain Terms Everyone With Fibromyalgia & Chronic Fatigue Syndrome Should Know
Pain comes in all forms: the small twinge, a bit of soreness, the random pain, the normal pains we live with every day. Then there’s the kind of pain we can’t ignore: a level of pain so great that it blocks out everything else, makes the rest of the world fade away until all we can think about is how much we hurt. How we manage our pain is up to us. Pain. We anesthetize, ride it out, embrace it, ignore it… And for some of us, the best way to manage pain is to just push through it.

Grey’s Anatomy (via julie911) (via quote-book) (via sarahbear9708) (via bluecrab)

I manage mine with medication. Lots of medication.

Just sayin’.